← Return to Statin discontinued due to neuropathy. What are some alternatives?

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@iceblue

@jeffrapp - Nicely said. I was considered a renegade in my younger years when I taught childbirth classes without being a medical practitioner. Silly me - I figured that having 2 - 4 children of my own and doing a lot of reading equipped me to do a better job than my local health unit - where our class full of first time mothers was told that we would experience 'some discomfort' while in labour. Not only did I learn that labour hurts like Hell - I also learned that being a medical practitioner did NOT equal 'all knowing'. Based on my own birthing experience, a critical component of my teaching to new mothers was: Do your own research and be an active partner in your health care.

I don't know if apple cider will lower cholesterol, but I agree that it is a choice and we should talk to our doctors if that's the route we want to go. Interestingly enough - I have been summoned to my new doctor's office because my cholesterol has been creeping up steadily over time. The only time it dropped was when I was on the Keto diet! I achieve ketosis very quickly/easily and I guess I could try that route again, but I am not interested in going back on that diet because it's so restrictive - so - I assume my doctor will want to talk to me about meds.... *sigh* Time to do some research on the subject!!!

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Replies to "@jeffrapp - Nicely said. I was considered a renegade in my younger years when I taught..."

Thanks for the compliment, @iceblue.
I certainly agree that we all must be active participants in our own health care, without being dismissive of the experts.
Regarding statin use, I have done some more research regarding whether or not they can cause PN.
I found one paper from 1999 which claims they do. However, they were all case studies (not double blind placebo controlled) so they were not optimum. I also don't agree with the conclusions they drew from the info they presented.
Another paper from 2019 is a meta-analysis (literature search) which claims they don't.
I have small fiber neuropathy, so I am mostly interested in that diagnosis. All the cases that were in the first paper involve axonal neuropathies, which I don't have. The PN of those patients was irreversible.They also all involved long term use of statins. I believe someone posted here that he took statins for a few weeks and thinks he developed PN because of the statins, and when he stopped, the PN was "cured". I don't find that very convincing.
For myself, after not taking statins for 2 years, and seeing my PN progress, I decided to go back on them.
Who knows?