← Return to Statin discontinued due to neuropathy. What are some alternatives?
DiscussionStatin discontinued due to neuropathy. What are some alternatives?
Neuropathy | Last Active: Aug 27 11:56am | Replies (360)Comment receiving replies
Replies to "@jeffrapp - Nicely said. I was considered a renegade in my younger years when I taught..."
Thanks for the compliment, @iceblue.
I certainly agree that we all must be active participants in our own health care, without being dismissive of the experts.
Regarding statin use, I have done some more research regarding whether or not they can cause PN.
I found one paper from 1999 which claims they do. However, they were all case studies (not double blind placebo controlled) so they were not optimum. I also don't agree with the conclusions they drew from the info they presented.
Another paper from 2019 is a meta-analysis (literature search) which claims they don't.
I have small fiber neuropathy, so I am mostly interested in that diagnosis. All the cases that were in the first paper involve axonal neuropathies, which I don't have. The PN of those patients was irreversible.They also all involved long term use of statins. I believe someone posted here that he took statins for a few weeks and thinks he developed PN because of the statins, and when he stopped, the PN was "cured". I don't find that very convincing.
For myself, after not taking statins for 2 years, and seeing my PN progress, I decided to go back on them.
Who knows?