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DiscussionStatin discontinued due to neuropathy. What are some alternatives?
Neuropathy | Last Active: Dec 7 10:41am | Replies (366)Comment receiving replies
Replies to "After my heart attack on February 8, 2010 I was introduced to a local Cardiologist who..."
I'm extremely sorry for what happened to you. On the other hand, from everything I've read, statins seem to be of net benefit for secondary prevention—for people like you who have already had a cardiovascular event. That doesn't necessarily make all of your suffering justifiable as you describe it, and if you choose to read for example, Dr. John Abramson's books, you'll see why I say this. The latest is called "Sickening: How Big Pharma Broke American Health Care and How We Can Repair It."
Many of us, I’ve come to realize, have suffered for years with serious adverse effects from a statin drug, usually a lipophilic statin drug, that we now know held essentially no proven benefit for us. You can look at photos on StatinStories.com, or go to one of the other websites people with statin side effects have created. There are many, many of us.
I'm not sure that at this point it matters whether there was or wasn't proven reason to prescribe, and sometimes push very hard, a statin drug on you or on me--in the end, as you say, we're "stuck with this condition" and suing the company for that won't make it go away. But if one needs money to pay for having to stop working or to pay for new health costs due to the adverse effects, yes, we should be able to sue-I believe it would make both our prescribing doctors and nurses and also the drug companies more honest and helpful. For example, my cardiologist, whom I told I was there for a second opinion on my need for statins, told me that they were so safe that some people think they should be in the water supply?
(You can find out if you wish what money or equivalent your doctor may have received from what pharmaceutical companies by going to Pro Publica's Dollars for Docs. I went, and like many others in our shoes, I was sickened again.
Perhaps even worse is the fact that you it seems, like me will not succeed in suing any generic drug manufacturer--not for failing to stay current on their warning labels; and not for defective drug design (what else is there?)--thanks to Supreme Court decisions in 2011 and 2013. (If I’ve said “worse”, it’s because SCOTUS makes decisions on lots of stuff that matters, and if you been reading the news in mid 2023, you know what’s going on.) You might sue a brand name drug, but of course, once their patent is expired and much cheaper generics are out, our insurance companies only cover the generics, and here you and I and millions of others are. One big difference brand name and generics involves ability to sue
Yes, our for profit health care system is broken, and many of us are victims of its deception and greed--we customers (patients) of course, but also our health care professionals. It must be pretty awful for them too.
Hi, @dutchman09 - wanted to let you know I moved your post on statins and neuropathy here so you could meet @marymaurer @wayno1234 @johnbishop @lorirenee1 @jacquespierre @crshowers, who have discussed this potential issue and may have some input for you on this connection or on your move from a statin to taking apple cider vinegar. @jimbotch also may have some thoughts for you.
Does your doctor think that being off the statin or taking the vinegar is making the most impact on your cholesterol at this point, dutchman09? Is your neuropathy any different after discontinuing the statin?
marymauer - Has the loss of feeling in your feet and lower legs continued? How are you doing?