Little is know of the condition here in Ireland. Myself n another person I think. It was only discovered in America in 2016 . I've had lumbar puncture s . An MRI scan n a Pet scan . On lots of medication steroids da r decreasing every month . They want to do another MRI scan soon . Lost the use of my legs . Back walking again . N attending physio. Symptoms started off as flu then vomiting. Attended ER 3 times to be sent home . Was told it was different things . On the fourth time I was kept . Was halucianting cant remember much . Was ventilated and in intensive care .

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