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charlottegrace (@charlottegrace)

Left ventricular non-compaction – LVNC

Heart & Blood Health | Last Active: Jul 12 1:28pm | Replies (16)

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@charlottegrace

I am doing well, thank you. In march my BMP was over 2000. My first post attack blood work showed that had gone down to just 14!!! But it cost me in breathing difficulties and weakness. We replaced the Carvedilol with another beta blocker and 1 week into it i have not found much relief and my carbon dioxide level is high and i jhave increased my oxygen to compensate for the buildup.

I still have questions about the reason for increased risk of sudden death, although i have found the reality of this really liberating. Knowing that my time could be cut short adds a sense of urgency to my life. I try not to miss an opportunity to express my love and appreciation for the people. In my world.

At the end of august i will have an echocardiogram to see if my ejection fracture (sp) has improved from 20%. We are aiming for 30÷. Ill let you know how it turns out. I am currently adapting to a new drug protocol again. So i dont feel too well yet, but i measure my progress in small improvements in my stamina and energy levels.

Wishing you health and happiness and thank you for your input and interest…………

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Replies to "I am doing well, thank you. In march my BMP was over 2000. My first post..."

good afternoon charlotte my name is cael I am 16 years old and in the past year, I have been diagnosed with Lvnc with a chance of sudden cardiac death. what mental health problems have you experienced after having been diagnosed and what problems have you go through.

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