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Abdominal swelling/bloating after a double mastectomy

Breast Cancer | Last Active: Mar 11 1:22pm | Replies (82)
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@cindylb

@chamisa See my post below. Keep a close, very close eye on any cuts (even the smallest). Keep at your PT and massage and other care. I 'thought' I was doing it right but I let one cut go and ended up in very bad shape with cellulitis. I too had 'mild' lymphedema....now I have hand and arm damage and it's not so mild. Stay vigilant. Hugs.....

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Replies to "@chamisa See my post below. Keep a close, very close eye on any cuts (even the..."
trixie1313 | @trixie1313 | Jun 28, 2020

@charisa, cindylb
I use a garden sleeve while out in the garden or brush as well to protect that arm.

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chamisa | @chamisa | Jun 28, 2020

Thanks for the alert. I stay vigilant and will do my best to continue so. I am very aware of how my arm looks, how it feels (hard to explain to others who don’t have lymphedema but I call it “my arm bothering me”... kinda nebulous but it’s a real thing.) I stay on top of cuts, scratches, abrasions, cracks. I avoid sunburns. It’s just maddening that it was never medically discussed with me; when I asked, my surgeon said “only” about 30% of his patients develop LE. Thank goodness I was proactive about asking and helping myself. I applaud the actress Kathy Bates for trying to educate more people about it. Good luck with your situation. 👍

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