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Abdominal swelling/bloating after a double mastectomy

Breast Cancer | Last Active: Mar 11 1:22pm | Replies (82)

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@carr

I had surgery Feb. 27, 2019 and had abdominal swelling. The hospital and my surgeon said the swelling was not swelling, they said my stomach appeared to me to be swollen because I did not have breasts. I started physical therapy 2 weeks ago and the physical therapist could tell right away that it was fluid. She did Manual Lymphatic Drainage (MLD). So, yes, I have lymphedema and the massage moved a lot of fluid out. She had me purchase an abdominal binder which I wear only during the day. Also, some elastic type shorts that come up to belly button and that have a wide elastic band for waist. I bought them from Dick's Sporting Goods Store. I bought the 9" abdominal binder from the medical store called Aids for Recovery. I wear the abdominal binder during the day at work and the shorts if I'm relaxing around the house etc..
Be sure if you go to a physical therapist that you confirm that they have been trained in lymphatic massage. Also, try walking to help.

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Replies to "I had surgery Feb. 27, 2019 and had abdominal swelling. The hospital and my surgeon said..."

@carr
That is great information...I'm going to check into belly binder. I already use compression camisole and do the lymphatic drainage, but the belly is annoying. I wondered also if it is because of being on the AI killing off all estrogen if that was having an effect.

I removed my 2 breast on the 13 of January and I have a large stomach they told me it will go down and it is 8 months now and it is still big

Thank you, @carr. This is great info. It’s lymphatic, not gastrointestinal. It’s hard to get people to understand that. FYI @almostoutofthewoods.

Thank You so much for your information on where to find aids. Right now I feel alone in this because I do not no what to do now that the surgery is over. I thought I was gaining weight but realized that I had lost weight and my belly was huge. No one spoke about this after the removal of my breast. I looked as if I was pregnant. I didn't hear anything about this condition. So thank you for the information, it is really helpful.