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@jager5210

I'm interested in the replies you get. I'm 72 and I have SFN. I saw one neurologist for over 3 years who said that nerve damage in not repairable. I was already taking Neurontin, have been for 20 years for degenerative disk disease related pain but he suggested Cymbalta and Lyrica. I told him I did not want to take anything that increased my risk for Alzheimer's and that's where we left it. He never told me in those sub 15 minute sessions what I can expect or what else I could do to minimize my pain which is getting worse. I decided to seek a consult with a hospital group in Atlanta that advertise they have a multi-disciplinary approach to PN. I saw a neurologist in company with a high school student and doc on fellowship. Early in the examination, I showed her a list of questions for which I was seeking answers and referenced Dr. Perlmutter, a neurologist I've seen on PBS, when asking about conditions like gut issues which, if resolved resulted in PN going away. This resulted in her saying; (this is a direct quote) "Why don't you just go home and die". Believe it or not, things just got worse from there. So, after 3.5 years and 2 neurologists, I still have no idea what SFN is or what my prospects are or what else I might do besides take Neurontin. BTW, I'm a retired psychologist and I never said anything like this at all to anyone. What in the hell is wrong with the medical profession?

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Replies to "I'm interested in the replies you get. I'm 72 and I have SFN. I saw one..."

Hi @jager5210 -- welcome to Connect. Sorry about your experience with an ignorant and insensitive neurologist on PBS. It's great that you are advocating for yourself and asking questions. The more you learn about your condition, the better questions you can ask and hopefully find a treatment that works for you. I have idiopathic small fiber peripheral neuropathy but only have the numbness. My story is posted earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

You might also want to consider joining the following discussions on Connect to learn what others have shared about their neuropathy treatments.

> Groups > Neuropathy > Living with Neuropathy - Welcome to the group
-- https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

> Groups > Neuropathy > Just Diagnosed with Small Fiber Neuropathy
-- https://connect.mayoclinic.org/discussion/just-diagnosed-2/

Also thought you might find the following information helpful.

Fibromyalgia, Small Fiber Neuropathy and Eye-Opening Developments in Pain Research: An FM and Pain Researcher Talks - Apr 13, 2015
-- http://bit.ly/2k9rWD2

May I ask how you were diagnosed with small fiber neuropathy?