← Return to Bronchiectasis, MAC and now Pulmonary Hypertension

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@Cathln

Terri, I appreciate anything you can tell me. I can't imagine 2 doctors just saying you're ok, if I'm not. I started my cultures today to see how MAC is fairing. I have known I have had it since 2012, but no official word until 2014…I just don't want to think I might have to find another pulmonary doctor. Had the same since 2005, but in 2016 I was only given a NP. She couldn't discuss my ct scan, she didn't know how too, so I left. This new doctor thought my MAC was gone. Hense the cultures. I understand that if you are doing fine, not to treat. One doctor told me MAC is slow growing, like moss on a tree. If it doesn't hurt the tree, we leave it alone. I am upset. I thought he would at least read my reports after 2 years. I see him every 3 months. I see I'm rambling, sorry. I'm hoping the H.P. is only affecting my valve. Thank you for you help. I really appreciate it,

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Replies to "Terri, I appreciate anything you can tell me. I can't imagine 2 doctors just saying you're..."

@cathin Some doctors treat, others do not. I have found that interesting. Down south (ex.Tennessee) they prefer to always treat. Up north many prefer to watch and wait until it is absolutely necessary to treat. It is important to find an ID doctor who is very familiar with MAC and watches/monitors the progression of your disease closely. (@irene5)

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