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Bronchiectasis, MAC and now Pulmonary HypertensionMAC & Bronchiectasis | Last Active: Apr 18, 2019 | Replies (10)
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Replies to "@cathln Hi. I am so sorry to hear that you lost your son. I cannot imagine..."
Terri, I appreciate anything you can tell me. I can't imagine 2 doctors just saying you're ok, if I'm not. I started my cultures today to see how MAC is fairing. I have known I have had it since 2012, but no official word until 2014…I just don't want to think I might have to find another pulmonary doctor. Had the same since 2005, but in 2016 I was only given a NP. She couldn't discuss my ct scan, she didn't know how too, so I left. This new doctor thought my MAC was gone. Hense the cultures. I understand that if you are doing fine, not to treat. One doctor told me MAC is slow growing, like moss on a tree. If it doesn't hurt the tree, we leave it alone. I am upset. I thought he would at least read my reports after 2 years. I see him every 3 months. I see I'm rambling, sorry. I'm hoping the H.P. is only affecting my valve. Thank you for you help. I really appreciate it,