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Bronchiectasis, MAC and now Pulmonary Hypertension
MAC & Bronchiectasis | Last Active: Apr 18, 2019 | Replies (10)Comment receiving replies
@Cathln Hi. I am so sorry to hear that you lost your son. I cannot imagine the pain and heartache of something like that. As for the H.P., I will have to investigate that. I know next to nothing about it. I will get back to you on that. I don't recall what tests were performed for my h.p. diagnosis because I had so many tests done from morning until 4:30 every day for two weeks. That was in 2016 when I was being pre-qualified tested for a lung transplant. I will get back to you on the p.h. info.
Replies to "@cathln Hi. I am so sorry to hear that you lost your son. I cannot imagine..."
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Terri, I appreciate anything you can tell me. I can't imagine 2 doctors just saying you're ok, if I'm not. I started my cultures today to see how MAC is fairing. I have known I have had it since 2012, but no official word until 2014...I just don't want to think I might have to find another pulmonary doctor. Had the same since 2005, but in 2016 I was only given a NP. She couldn't discuss my ct scan, she didn't know how too, so I left. This new doctor thought my MAC was gone. Hense the cultures. I understand that if you are doing fine, not to treat. One doctor told me MAC is slow growing, like moss on a tree. If it doesn't hurt the tree, we leave it alone. I am upset. I thought he would at least read my reports after 2 years. I see him every 3 months. I see I'm rambling, sorry. I'm hoping the H.P. is only affecting my valve. Thank you for you help. I really appreciate it,