Connect
← Return to Bronchiectasis, MAC and now Pulmonary Hypertension
Discussion
Bronchiectasis, MAC and now Pulmonary Hypertension
MAC & Bronchiectasis | Last Active: Apr 18, 2019 | Replies (10)Comment receiving replies
@Cathln, Hi there. I am so impressed that you beat M Kansasii and Abscessus. That is usually no easy feat. That tells me that you are really strong and you will be ok. I I too have been diagnosed with mild pulmonary hypertension, but I am not concerned about it. Maybe I don't know enough about it to be concerned. What are they telling you about it that has you so upset? I also have COPD that my pulmonary function tests put me in the severe range, although, I don't feel like it is. I do have shortness of breath pretty bad though. I have had mac and pseudomonas, and now test negative for it. I take antibiotics, (not the Big 3) to keep infections away. My dr said I will probably need them for life. I have zero side effects, so I am ok with that. I am on no meds for the P.H. What drug to they want to put you on to treat it? I forgot to mention that I have bronchiectasis as well.
Replies to "@Cathln, Hi there. I am so impressed that you beat M Kansasii and Abscessus. That is..."
Connect
Terri, thank you for answering! I am not on any meds for any of my lung ailments. The Pulmonologist said P.H it's mild, and done with an Echo, so there are better testing we have. Echos are ok but aren't reliable for checking arterial pressure. Have you had a different test for P.H.? I have no symptoms, Not short of breath, I can walk, do housework, within reason for age and arthritis. I am being checked again this week for MAC...I have only had one scope back in 2014 that grew MAC....I have lost 11 or so pounds, but lost my son, and I am having such a hard time, even 2 years later. I do get antibiotics, but only when I bleed. Cardiologist does not want to see me again, said my heart is just fine. I don't know what to think. I am worried, and lung doctor didn't seem to think it's a big deal at all...
' I am happy you are negative for MAC. Those meds can be brutal. Was on 2 IVs every other day for 9 months and 3 oral for 18 month...Now I have another, plus Bronchiectasis, and H.P.. I needed so badly to hear from someone with H.P.. Thank you so very much.