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Hello @kristiesmith221, I would like to add my welcome to Connect along with @lisalucier and other members. I know it can feel overwhelming when faced with a hard to diagnose condition. I'm glad that you are actively seeking answers and learning as much as you can about your condition. It's also great that you have doctors that are working with you and listening to you. I have no medical training or background but it does seem like a meningioma brain tumor may cause some of the symptoms you are describing. I did find an article that does into depth discussing the meningioma brain tumor that may provide some insight for you.
UCLA Health - Meningioma Brain Tumor
-- http://neurosurgery.ucla.edu/meningioma-brain-tumor
I also wonder if you doctors are still trying to narrow your condition down to a common factor. Have you asked the doctors how or if the current conditions are related?
Replies to "Hello @kristiesmith221, I would like to add my welcome to Connect along with @lisalucier and other..."
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Thank you for the link! I am going to read it tonight... The neuro-surgeon actually told me the other day, the meningioma doesn't have anything to do with my condition. He said they can cause tremendous issues, but where mine is located, it's not causing the problems. One neurologist told me I am trying too hard to wrap everything up into one- I may just have conditions that are unrelated. I believe it is baffling to everyone. I know Lewis Carroll had some of the issues with AIWS, but not the others I have mentioned. I am thankful to have the best of the best- it is just hard to deal with conditions without any true answers anyone can give. Thanks so much for the replies!! I appreciate it and will read the article... :