Replies to Thanks for the clarification, @kristiesmith221, that you have been diagnosed with all of these symptoms and…

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Brain & Nervous System | Last Active: Apr 11, 2019 | Replies (8)

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@lisalucier

Thanks for the clarification, @kristiesmith221, that you have been diagnosed with all of these symptoms and you are looking for one factor causing all of these conditions: Epstein Barr or Lyme Disease, meningioma brain tumor, central apnea, detached retina, chronic migraine, migraine with aura, Alice in Wonderland Syndrome, REM Sleeping disorder, Horner's and Adie's Pupil.

I think that @johnbishop @jenniferhunter @gloriajean @warpedtrekker @danny59 @skk15 @basslakeview @mrmie may have some thoughts for you on potential connections with all these diagnoses and provide some support.

Did your doctors have a theory, @kristiesmith221, on a common factor? How are you managing these conditions presently?

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Replies to "Thanks for the clarification, @kristiesmith221, that you have been diagnosed with all of these symptoms and..."

kristiesmith221 | @kristiesmith221 | Apr 11, 2019

Hello Lisa! I was wondering if I could have Epstein Barr or Lyme since I have been diagnosed with all of the others. None of the doctors have mentioned Epstein Barr or Lyme - it's just been my researching for answers that make me wonder about either one of those causing the conditions.
For the migraines, I am receiving Botox (32) shots per 3 months, taking Maxalt as needed and I'm also on a preventative medication for them. For the cluster headaches, I take Advil. What is also helping is the AIRCURVE10 Bi-pap for the central and obstructive apnea,
The doctors help me with Alice in Wonderland (AIW) through medicating the migraines.
The chronic aura (black moving dots, floaters, and flashing lights) are a part of the AIWS I've been told.

Nothing is really done for the pupils except that I dodge light constantly. I've noticed with the cluster headaches, lying down makes them so much worse, so I try to stay active as much as possible.

The main lesson I've learned in all of this is to keep moving. I may go to an event when I can, but I am easy on myself and stay until I get tired. Just getting out helps, but there are days when I cannot go anywhere, and I have had to make peace with that part of myself.

I've been searching, going to drs, looking online for an answer and cannot seem to find the reason for all of this happening other than possible Lyme or Epstein Barr. I will experience chills, and a mild sore throat when I feel really bad.

Thank you for taking the time to read all of this! I appreciate it so much!

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