← Return to Whipple procedure and follow up chemo

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dakotarunner (@dakotarunner)

Whipple procedure and follow up chemo

Pancreatic Cancer | Last Active: Aug 2, 2020 | Replies (52)

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@marvinjsturing

@dakotarunner I had my Whipple on June 5 of 2014. The surgeon removed most of my pancreas, 1/3 of my stomach and my duodenum. What was left of my pancreas was so bad that the surgeon did not reattach it to my digestive system. I was diagnosed as Stage 2b. Cancer was found in the tumor on my pancreas and in 1 lymph node. I was released from the hospital on June 11 and started chemo on July 22. It was 5 years ago, but if I remember correctly, I was given Tylenol, an antihistamine, a steroid, anti-nausea medicine and finally gemzar (gemcitabine). I usually took more anti-nausea medicine at night on the day of my chemo. I did this for 3 weeks and then had one week off. The treatment lasted for 6 cycles. After my first chemo, I went to work. That only happened once. After every other chemo treatment, I went home and slept. It was the antihistamine that made me tired. The chemo never made me feel very sick. After every 3 chemo treatments, I was given neulasta. For me, that was worse than the chemo. My legs just above the knees just ached from the neulasta. As far as fatigue, there were days that I felt good so I got ready for work. That effort wore me out and instead of going to work, I sat down in my recliner and slept until noon. Your local oncologist will be able to tell you about your options for treatment. I hope things go as well for you as it did for me.

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Replies to "@dakotarunner I had my Whipple on June 5 of 2014. The surgeon removed most of my..."

Thanks, @marvinjsturing, for providing some personal experience with the Whipple procedure. I'm sure that this will be helpful to @dakotarunner.

I am also wondering how you handle eating meals. Did you need to start eating small frequent meals as well? If so, are you still following this type of eating plan?

My husband and I are at Mayo currently for evaluation of his pancreatic cysts. Although we don’t have a cancer diagnosis the appearance of the cysts is worrisome. Diagnosis wouldn’t actually be able to be determined until surgery. We will be meeting with a surgeon and expect to be discussing the Whipple procedure. What questions did you ask your surgeon and what do you wish you had asked? What do you wish you had known about the surgery and recovery? Any tips on being prepared for diet and cares upon return home? If you had surgery at Mayo, where did your companion stay while you were hospitalized, how did you handle reservations when you don’t know how long the stay will be? Many thanks to anyone who can advise me.