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Breast cancer survivor, now I have MAC and bronchiectasis

MAC & Bronchiectasis | Last Active: Jan 22, 2022 | Replies (31)
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@kathyhg

Thanks. I did a bit of reading and saw a few statistics, as reliable as statistics can be, that said that approximately 30% get it back again and those tend to be people who have bronchiecstatis and/or other lung conditions. I have bronchiecstasis so this could be me - very sobering thought.

It is a good thing that I'm learning about this gradually or it would be totally overwhelming.

I guess the best we can do is to do all we can to get through the medication period and build our immune systems, do what we can to keep our lungs healthy and improve overall state of health given that it is almost impossible to avoid sources of MAC in the environment. I always considered myself a healthy person so this changes my perception of healthy as well!

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Replies to "Thanks. I did a bit of reading and saw a few statistics, as reliable as statistics..."
pinkwarrior | @pinkwarrior | Apr 5, 2019

I couldn’t have said it any better. My feelings exactly and yes it’s a good thing Gradually learning about this disease.

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kathyhg | @kathyhg | Apr 16, 2021

I agree that it is overwhelming to learn all about this disease at once, although useful if you have to make a decision about medication.

It’s kind of disheartening to hear that when we work so hard to clear our lungs and hope that they stay that way. I was on the “big 3” for 6 months, until I lost my hearing in one ear and that happened overnight, and my AFB score was 4+ despite taking the medications for that length of time. I’ve been using 7% saline in a nebulizer for about 18 months and my AFB score is “few” right now so lower than 1+ but not quite 0. My hope is also that I can get it to 0 and that it stays that way.
Hope springs eternal 🙂

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