← Return to Breast cancer survivor, now I have MAC and bronchiectasis

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@onana

@pinkwarrior Hi Pink, welcome. I'm so sorry you have already been through so much and now you're looking at another challenge, more medicine. However, you have come to the right place. There's a lot of information and a lot of hope here. People more knowledgeable than I will give you advice about how to navigate this site to find the information you're looking for. My advice (having dealt with a bronchiectasis diagnosis since 1997 and MAC diagnosis since 2008) is make sure your doctor is experienced when it comes to these specific conditions. Some pulmonologists don't know much about either condition. It all depends on how advanced the bronchiectasis is and whether the MAC is simply present or doing damage. National Jewish Health in Denver and Mayo Clinic are the places that offer the best resources related to bronchiectasis and MAC. But there are many excellent providers throughout the country. I would say, chin up. This is not the end. There is help for you. Be willing to find the best care and be your own advocate. Eat well, rest, exercise, practice good lung hygiene and you can maintain a good quality of life despite these conditions.

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Replies to "@pinkwarrior Hi Pink, welcome. I'm so sorry you have already been through so much and now..."

Thanks for the encouragement. I really got help from the breast cancer blogs I joined. My oncologist sent me to the pulmonologist when my CT scan didn’t clear up. It kept showing small noodles. The pulmonologist suspected MAC but waited to rescan me. I finally had a bronchoscope and the culture grew MAC in 8 weeks. It said +1. I have no idea if that’s good or bad. I have a follow-up in a month. I am also supposed to see ID doctor. From reading the posts, they are the doctors who push for the antibiotics. Can you stop and start these 3 drugs everyone mentions or are there no breaks in the routine once you get started?

Thank you.

onana, if there’s ever a “roundup” of good posts from this forum I expect yours will be among them. Don