GrandmaR, your story of your shingles experience is quite stunning. I'm so sorry this happened to you. I have similar symptoms, having nothing to do with shingles.for about 12 years ago, I began having double vision, diplopia as it is referred to. I was also checked out at the hospital for serious matters, brain tumor, MS, and who knows what else. All came back negative but I do have, 6th Cranial Nerve Palsy. All the Neuro ophthalmologists say is it is "idiosyncratic", a nice word for "who knows". I live with it, and it not fun. I wear prisms in my glasses to help to reduce the double vision, but it is not 100%. I get checked every few years and still there is no further understanding of this malady.
Interestingly, I received the shingrix vaccine in summer 2019 and within a few months started becoming increasing disabled, cramps, inability to ambulate arms/legs, weight loss, extreme fatigue, and was diagnosed with PMR and the GCA. So, there you go. For me the vaccine was the trigger to the PMR (my opinion) for you the virus attacked your nerve. There are connections there no doubt.
BTW, I had shingles much earlier in life (after childbirth) around my waist, and while it was uncomfortable it wasn't horrible. Just my experience with shingles around the girdle not the head/eye region. Thank you for sharing your experience. I could not tell, do you also have PMR?
@karinaph
Hi!
So sorry to hear your story. I do not have PMR, although it sounds a lot like Fibromyalgia, which I do have. I also have OA and spinal problems. It's hard to tell where my pain comes from. I had 2 spinal surgeries a couple of years ago and it helped a lot!
My vision issues were temporary, although I still have some permanent affects. The doctor who thought I had shingles was my eye doctor and he was right. He did tell me that if my eyes didn't get better I would need glasses like yours.
I've had Shingles shots since they came out.
Of course, these days, it's the COVID shot we are trying to get.
Best of luck to you!