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@sadfeet

I have neuropathy in my feet from chemotherapy. My oncologist told me at the time I was crazy and my chemo (Adriamycin) did not cause neuropathy even though my feet and legs felt like I was being electrocuted with every dose. That is another long story.( She is a horrible person and should not be a doctor!)
I feel the electricity like feeling in my feet 24 hours a day. And no I have not made peace with it. It is more like somedays I tolerate it better than others. Sleep helps. (I have to take medication to fall asleep). If I slept well the night before I have more energy to stay distracted during the day. The more I distract my brain the less my brain will pay attention to my feet. It is hard because we don't have the energy to constantly do that. I feel it the most when I am sitting still at the computer or trying to read a book or any time at rest. Everyone in my life knows about my neuropathy but there is nothing they can do. It is very isolating to deal with on my own every day. So every day is a new challenge on how my coping mechanisms will be. Also having to worry about the cancer showing up again is another weight on my mind. It is like mental gymnastics trying to deal with it every day and try and put on a happy face for my family and friends. So no peace but just coping.

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Replies to "I have neuropathy in my feet from chemotherapy. My oncologist told me at the time I..."

I hear you I feel like I am in a invisable prison chamber of pain . For me it is all over my body after a neck surgery . Surgeon could care less !!

Your oncologist is wrong, even though she denies it -- your doctor should have changed you to a different chemo once you told her of your pain when you were doing chemo. It is so sad the oncologists don't realize that certain chemo treatments will cause neuropathy. For anyone who is in a similar situation, please work closely with your oncologist. It is terrible enough to battle cancer, but then to have neuropathy on top of it. Not good !!