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The math of invasive breast cancer risk for LCIS
Breast Cancer | Last Active: Jun 20 9:12am | Replies (55)Comment receiving replies
My surgery is this week. I am 50 yrs old. I am scheduled for nspbm with expanders. I hope to do ok and I hope to have DIEP at some point in the next few months. I am honestly terrified but this past year when An enhanced 6 cm nodular nonmass was found on my mri I felt a total loss of control. This was only two months after having a biopsy that showed a benign fibroadeonoma on the other breast. The fear that went through me that week was worse. I felt betrayed after having mammos and Sonos every year and doing everything I was suppose to do. I always felt we as woman were in control by having our yearly mammograms. This year I found that lobular hyperplasia and chances doesn’t always show up on imaging and that mad me angry. One one of three surgeons agreed to remove the fiboadenoma along with the nonmass on the opposite side. That is where the alh was found
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I have had a similar experience. Always an annual mammogram and this year my local radiologist called for an ultrasound (showed nothing) and a biopsy in mammogram. That’s when the rollercoaster began. They call it a ‘journey’ but that’s too nice. Initially was told locally that just a lumpectomy and radiation. I decided to get a 2nd opinion at Mayo. They asked for a breast MRI. They found 2 more suspicious spots and concern of one of my lymph nodes (locally not concerned). Had 2 biopsies in MRI (worst thing so far) and needle biopsy of my lymph node. They didn’t see any cancer in the lymph node and both spots on the MRI biopsies were positive. All three spots were in different spots on my breast so no way to save that breast. Had my breast surgery (skin sparing mastectomy and a breast reduction on the other side). No cancer found in the other breast (thankful so much for that). Cancer was found in the 1st three sentinel nodes so they removed a total of 29 nodes. 5 total were cancerous. Had a quick one day there and back trip to Mayo for a PET scan. Again thankful for the results not showing cancer elsewhere. However, despite being told probably no chemo, I’m now heading into 5 mos of chemo (doing it locally) and then radiation, followed by by endocrine therapy meds.
All the doctors at Mayo call lobular cancer ‘sneaky’. I asked I missed some signs and they said ‘no’ it so hard to detect. They could find and lumps either. And the lymph node that was biopsied didn’t show cancer, but indeed it had already spread there without anyone seeing it on any imaging.
I’m very thankful for Mayo in finding the additional cancer. I’m not sure where I would be if I had proceeded with the local surgeon’s plan. Not excited about chemo but want my best chance of long term survival.
I wish you all the best on your ‘rollercoaster’ cancer ride. Stay strong - we will beat this!!