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Interested in hearing people's experiences with PRRT

Neuroendocrine Tumors (NETs) | Last Active: Oct 16, 2023 | Replies (138)
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@hopeful33250

Hello @klpetts,

I hope you are feeling better. As I recall, when you last posted you indicated that you would be having a follow-up CT in March. Has that been scheduled yet? I look forward to hearing from you. Will you post an update when it is convenient for you?

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Replies to "Hello @klpetts, I hope you are feeling better. As I recall, when you last posted you..."
KL | @klpetts | Mar 25, 2021

Thanks for checking in on me. On March 17 I had lad work and a Nuc Med PET CT, results were given to me on Monday and were not in my favor. Therefore the PRRT treatment is no longer working for me. Last week (Mar 24) I had a Nuc Med PET CT and lab work done. Tumor count has gone back up (was 158 now 951) and the CT showed progression of the cancer, is now in many more places. I will be starting an oral chemotherapy treatment next week in addition to the injection that I get every four weeks. The two oral chemotherapy treatments that I will be starting; Xeloda and Temodar. Karin

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