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DiscussionInterested in hearing people's experiences with PRRT
Neuroendocrine Tumors (NETs) | Last Active: Oct 16, 2023 | Replies (138)Comment receiving replies
Replies to "I guess this is the end of the run on PRRT. I have lung nets with..."
Hello @gapsc,
I am also a patient with NETs. I had my first COVID vaccination last week, however, I do not have any metastasis. As @colleenyoung, suggested, you should definitely talk with your oncologist regarding this vaccine, especially the coordination of the vaccinations with your PRRT treatments.
I will be having surgery on 2/4 (not NETs related) and the hospital pre-surgery screener suggested that I wait an extra week for the 2nd vaccination Timing is always important with these types of treatments/procedures.
If you are comfortable sharing more about your history with NETs: how long ago were you diagnosed with NETs; what treatment have you had so far?
Hello @gapsc
I hope that by now you have had your COVID vaccine. Did it go well for you without too many side effects?
When do you anticipate starting PRRT?
Hello @gapsc,
As it has been several months since you last posted, I was thinking about you and wondering how you are doing.
Will you post an update at your convenience?
Hi @gapsc, these are good questions to ask your oncologist regarding the COVID vaccine and its possible interference with the effectiveness of PRRT or PRRT disrupting the effectiveness of the vaccine. I would ask not only about the first shot a week before PRRT, but also remind them that a second shot is required.
Gapsc, is the metastases a recent diagnosis?