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Interested in hearing people's experiences with PRRT

Neuroendocrine Tumors (NETs) | Last Active: Oct 16, 2023 | Replies (138)
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@klpetts

Yes, Nov 30 I had lab work, CT and office visits. Lab work showed that my tumor marker count is now down to 158; one year ago it was over 1100. Platelet count is at 53. CT results showed a slight decrease in in the size of the pancreatic tumors. Because the cancer had also spread to bone in March a PET CT was ordered, that was done on Dec 10. Those results showed a slight decrease in activity in the abdominal lymph nodes and bone. Will have repeat labs next week to check the platelet count, the octreotide injects will continue every four weeks and a repeat PET CT in March with labs and office visit. Feeling good for the most part; just tire easily.

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Replies to "Yes, Nov 30 I had lab work, CT and office visits. Lab work showed that my..."
Teresa, Volunteer Mentor | @hopeful33250 | Dec 21, 2020

Hello @klpetts,

It's so good to get an update from you. I'm glad to hear that your tumor marker count was down by that much over the past year. I'm glad that you are feeling good. Tiring easily is probably to be expected?

I hope that your next blood test and PET CT in March show more improvement.

I look forward to hearing from you again.

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Teresa, Volunteer Mentor | @hopeful33250 | Mar 10, 2021

Hello @klpetts,

I hope you are feeling better. As I recall, when you last posted you indicated that you would be having a follow-up CT in March. Has that been scheduled yet? I look forward to hearing from you. Will you post an update when it is convenient for you?

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