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Interested in hearing people's experiences with PRRT

Neuroendocrine Tumors (NETs) | Last Active: Oct 16, 2023 | Replies (138)
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@hopeful33250

@klpetts Hello Karin,

I just wanted to check in with you to see how you are doing. I recall that at the end of November you were having some blood work, a CT, and an office visit. How are you feeling now? Do you have any results from the tests you had last month?

I'd enjoy hearing from you again. Will you post again when it is convenient?

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Replies to "@klpetts Hello Karin, I just wanted to check in with you to see how you are..."
KL | @klpetts | Dec 20, 2020

Yes, Nov 30 I had lab work, CT and office visits. Lab work showed that my tumor marker count is now down to 158; one year ago it was over 1100. Platelet count is at 53. CT results showed a slight decrease in in the size of the pancreatic tumors. Because the cancer had also spread to bone in March a PET CT was ordered, that was done on Dec 10. Those results showed a slight decrease in activity in the abdominal lymph nodes and bone. Will have repeat labs next week to check the platelet count, the octreotide injects will continue every four weeks and a repeat PET CT in March with labs and office visit. Feeling good for the most part; just tire easily.

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