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Interested in hearing people's experiences with PRRT
Neuroendocrine Tumors (NETs) | Last Active: Oct 16, 2023 | Replies (138)Comment receiving replies
Letting any of you that are considering the PRRT treatment know that my first treatment last Friday (April 24) went well. I happened to arrive early and they were ready for me! Once in my hospital room for the day I had the series of infusions and the lutathera and was able to leave later that afternoon. I had to practice even more social distancing (3 feet) from everyone for 72 hours. Only reaction that I had was some nausea on Sunday, but that may have been from something that I had eaten or perhaps had done too much around the house, since I was feeling good I thought that perhaps I should get some things done. Next time they will wait.
Replies to "Letting any of you that are considering the PRRT treatment know that my first treatment last..."
@klpetts Hola, mi padre recibió hace un mes su primera infusión con lutathera. Mi padre tiene NET primario en apéndice con metástasis a hígado y después de la infusión ha presentado muchas crisis carcinoides. Nuestros médicos no saben mucho del tema ya que aquí en México es muy raro. ¿Cómo le ha ido a usted con esta terapia? Usted presentó en algún momento el síndrome carcinoide luego de la terapía? y si es así ¿qué tratamiento le daban para los síntomas? Es bueno saber que a usted le ha ido bien. Saludos
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Hello @klpetts
I'm so pleased that you finished your first PRRT treatment and I'm glad to hear that you are feeling OK. How nice of you to report your progress!
When will you be having your next treatment?