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DiscussionInterested in hearing people's experiences with PRRT
Neuroendocrine Tumors (NETs) | Last Active: Oct 16, 2023 | Replies (138)Comment receiving replies
Replies to "Thank you Teresa. In August of 2019 I went to the ED for abdominal pain, after..."
Hello @klpetts,
I am sorry to hear of your struggle with a NETs diagnosis. I can only imagine how disappointed you must be. If you don't mind sharing more, could you share what the other treatment option was?
I am wondering, however, why your appointments in Rochester (I'm assuming that you were going to the Mayo Clinic) were canceled.
All patients have the right to obtain a second opinion. Have you considered getting a second opinion at Mayo to see what other options may be available to you?
Here is a video presentation from Dr. Thor Halfdanarson, who is a world-renown NET doctor at Mayo. You might find his talk interesting,