First of all, welcome to Mayo Connect. I see that you just began posting today and I'm glad that you are reaching out on this discussion group. On Mayo Connect, we have only had one Member who has mentioned PRRT treatment. She is this process now and I will invite her to discuss it if she would like to. Her name is @tresjur.
Regarding your appointment at Mayo in Jacksonville next month, you should definitely discuss this with them. I have not been treated at Mayo. While I've had three surgeries for NETs at this time there is no evidence of metastasis, so I have not looked into this type of chemotherapy. I'm sure that they will do their best to answer your questions. As I was reading some of your other posts it seems like you have met with a lot of doctors who have indicated that your type of tumor is not a candidate for this type of treatment. Is that correct?
How are you feeling now? Do you have symptoms of carcinoid syndrome? What is your greatest concern right now?