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ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

Chronic Pain | Last Active: Apr 2 2:07pm | Replies (305)

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@rt061069

@lasirvent So did you get tested for MALS and did you have then a surgery/procedure. I havent been checked for that yet but I do think there is one doctor in STL that deals with MALS. The pain for the first year was navel to xiphoid process, constant pain and aching but no problems with nausea or bathroom issues. Then around the 16 month the pain extended down to pelvis. Mornings are the worse once I awake after say 5-7 hrs of rough sleep I go to the bathroom and pain is terrible right afterwards. I have the pain when I awake but most mornings after the pain from navel to pelvis is 8.5, its slowly then adds a lot of pain up the middle to xiphoid and makes a ridge of pain below the rib line. I have pain both above and below navel that take turns on who wants to be the worst pain. My next block by new pain mgt doctor is in two weeks and it will be ilioinguinal and iliohypogastic. Those were done with steroids after my first injection that was just the numbing medicine. That was 16 months ago, it helped after a day for say 48 hours of 80% less pain, then it came back. They then tried other blocks but not celiac or splenic block. Celiac would be the next block to try. Then I guess Mals, I just can't find a script that provides relief of really any kind, I wish taking a 10mg Hydro, Oxy, antidepress, gabapenin or lyrica helped but they don't. Did you every find a drug that helped?

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Replies to "@lasirvent So did you get tested for MALS and did you have then a surgery/procedure. I..."

It sounds like you may be suffering from ACNES. First need to take the Carnett Test, second find a pain doctors who will give you trigger shots for TEMPORARY relief and Third and the most difficult find a doctor who will surgically kill the nerves causing the pain. I had the surgery on 9/2/21 at St Joe's in Phoenix by Dr Thomas Gillespie done Robotic Laparoscopically. Went home same day and am now pain free. Thank God for Dr. Gillespie and his team. I believe he is the only doctor in the US to use this technique. Best of luck!