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ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

Chronic Pain | Last Active: Aug 16 2:32pm | Replies (305)
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@fireball59

I believe I got this syndrome. I am a former Gastric Lapband patient. The device broke twice. I have had terrible spasms for 13 yrs and can not find anyone to investigate if I have this syndrome. After all the reading and research I have done, I cant seem to find a doc who can test me for this or even has heard of it. I went back to Bariatric, he said its prob nerve damage, so I followed up and I went to neurologist, and he can not help me, I went to pain management, they can not help me. I called the gastro.. they have no clue. Please if anyone knows who I would go to for this problem please let me know. Again I suspect its Abdominal cutaneous nerve entrapment syndrome.. I fit this to a T

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Replies to "I believe I got this syndrome. I am a former Gastric Lapband patient. The device broke..."
Colleen Young, Connect Director | @colleenyoung | May 29, 2020

Hi @fireball59, welcome to Mayo Clinic Connect. Please meet other members who are talking about abdominal cutaneous nerve entrapment syndrome (ACNES) in this discussion. Like you @leet3415 has seen many doctors and was finally diagnosed with ACNES at Mayo and @wancio mentions experts in the Netherlands.

Here's another discussion that may interest you.
- Has anyone been diagnosed with Abdominal Wall Pain https://connect.mayoclinic.org/discussion/has-anyone-been-diagnosed-with-abdominal-wall-pain/

In this video, Mayo Clinic gastroenterologist, Dr. Amy Oxentenko talks about an article published in Mayo Clinic Proceedings, detailing the complexities of diagnosing chronic abdominal wall pain – a condition that seems elusive to any workup.


Does this video ring true to your pain experience?

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anna0215 | @anna0215 | Jun 8, 2022

I want to THANK YOU for this post!!! I feel like I’m in a boat that’s going down fast. My story: Woke up this this bulge in my belly and back pain on my right side on 2/11/22, Hubby decided I needed to go to the ER on 2/15/22. They did a CT with and w/o contrast. Morphine because my B/P was getting close to stroke zone. Sent me home with no meds! ER referred me to the GI dr and a surgeon.waited a month to see GI and month and a half for the surgeon.
Spent the next 10-15 days in bed, lost 15 lbs. The Hubby calls my PCP, bring her in…she didn’t believe I was in a wheel chair! Ive had additionally an MRI, 2 Ultrasound, endoscopy and colonoscopy all since February 15, 2021, they can not find anything. Since March 1, I am now taking, Trulance, Dicyclomine, Pantoprazole, Amitriptyline, and Lisinopril!! Plus my other meds, Hydroxyzine, Duloxetine, Methocarbomal, and Gabapentin. So nothing showed up on the “Dynamic Ultrasound” two days ago, and now I’m waiting for call backs! I just pray everyday and search for possible solutions! This seems like a possibility!

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