Hi @lisalucier my anxiety is better, i think but still been having seizures everyday! I thought the new cbd oil I have was helping but unfortunately its not so much anymore :/ when I have a seizure it does me in for the rest of the day! Cant remember anything and just dont feel "normal" always feeling "off" about everything. Its hard to explain!! My VNS has been hurting my neck area when it comes on. I want to just get it turned off when i go to my next appointment, since its not doing anything! Thank you for asking!!

Hi Lisa, sorry for the late reply.. for some reason these emails were going to my “junk”. I”m doing well considering. My memory issues remain, and I’m still exhausted most of the time, however I’m still seizure free and that’s awesome. It seems that the rituxan is causing my allergy symptoms to really stand out and be resistant to meds. Went to an allergist/immunologist and did a bunch of allergy testing and will be starting my shots in the near future. My neurologist wasn’t quite sure if it would help (I have chronic sinus infections), but the allergist believes it will, so it’s worth a shot for me to try and get that off my list and stop all the allergy meds in the future. Finally went on a longer rockhounding trip (missed last year due to my encephalitis). Drove all the way up and all the way back and that in itself felt awesome! Prior to that I flew home (Hawaii) and was there for a month to help with my mom who ended up passing. My wife and sister were really scared about me flying alone, but I made it. United airlines app was wonderful with directions to gates, etc. Both trips were milestones for me as I wouldn’t have been able to do them last year. So I’m one happy girl!