← Return to Many seizures, extreme anxiety

Discussion

Many seizures, extreme anxiety

Epilepsy & Seizures | Last Active: Jan 24, 2020 | Replies (42)

Comment receiving replies
@valm

Has your neuro ever tested you for encephalitis? I started with Facialbracial distonic seizures and took a video of it. I was admitted to the hospital and my neuro took the video home and studied and searched and said “I think I know what you have” . Took some spinal fluid, sent it to Mayo in Rochester and I was diagnosed with Autoimmune Limbic Encephalitis. Many people have diffferent seizures and other symptoms and are often misdiagnosed. There are many types of encephalitis with different behaviors/symptoms. I would strongly recommend your doctor have you tested so you can receive the proper treatment and get it under control. I”m on Keppra, Vimpat, CBD oil, and every 6 months Rituxamab infusion. When it first started I spent 10 days in the hospital, and went through steroids, Keppra, IVIG which worked for a few weeks then stopped, and then finally on Keppra again with Vimpat which also worked for a only worked for a while and then they increased the dosage and gave me Rituxamab. Seems like they finally found the right formula for me as I’ve been seizure free since Jun 13, 2018. My memory is still pretty scattered. I can pretty much only live in the moment as there are no guarantees that anything will be stored in my memory. Sometimes I can hear the same thing 3 times in a row and it still doesn’t stick. I also get brain “overload”. If too many things are going on or said, or if I”m already trying to process something and someone interrupts, I have a very difficult time and my brain “overload” switch triggers and shuts down. I can’t deal. Anyways, I wanted you to know that there may be other possibilities for a diagnosis that could potentially effectively help with most of your symptoms. They have found that the sooner encephalitis is diagnosed, the better the long term outcome.

Jump to this post


Replies to "Has your neuro ever tested you for encephalitis? I started with Facialbracial distonic seizures and took..."

@valm Hi, sorry for the late response, havent been on in awhile. But no ive never been tested for encephalitis. That word has never even been brought up! About a month or 2 ago I tried some new cbd, the ratio is 8:1 (cbd:thc) and i went 5 days without having any seizures or auras, thinking finally this is what i needed, im better!! Then for no reason at all I had 2 seizures yestetday, was very disappointed, thought I was on the right dose and everything is going good then BAM! Setback, again! :/ I will be asking my neuro about encephalitis at my next visit with her, cant hurt! Thank you!