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@lorirenee1

Hi Laura, I really have to say that I do and don't like the compounding cream I have. It costs 300 bucks for an ounce, and I would never buy it again. There are about 12 ingredients in it, including ketamine, gabapentine, lidocaine, and I have no idea what else. All of my pain is in the balls of my feet and toes. That is it. The compounding cream makes my toes very stiff, which I don't like, but takes pain away. It is very good for pain in the ball of the feet. I have a CBD salve for 25 bucks that works better. My salve is fabulous for my gnarly, achey, toes. It makes them feel human again. Please, if you want info on the salve, let me know. I swear by it, but everyone is so different. I have had a revelation today, but it may change, because it seems nothing is consistent with neuropathic pain. It seems that shoes trigger either a good or bad day. If a shoe sets off pain, I am in trouble off and on, all day. Today I am wearing a pair of very open sandals. Sometimes I cannot even wear this shoe!!! God in heaven. You have just a few days before you see the doc. Did you have a catalyst that got your pain started again, after it was manageable? Let me know how it goes Friday. I cannot wait to get my epidural on the 15th. If I wind up without pain, I am throwing myself a party, after I stop crying....

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Replies to "Hi Laura, I really have to say that I do and don't like the compounding cream..."

@lorirenee1, yes I forgot to answer your question about how the pain began again. I started having a dull pain in big toe and under the ball of big toe. The Podiatrist took an X-ray and thought I had sesamoiditis. They put a large Metatarsal pad in my shoe along with some Superfeet orthotics. That really set everything into a huge raging flare. I could never wear orthotics or most shoes without stirring up pain before any of this happened. The Podiatrist ordered an MRI which said the sesamoid bones were “unremarkable”. The Podiatrist was on the fence concerning a CRPS diagnosis so he sent me to the Pain Specialist and the Pain Specialist is glad I requested from my PCP to get a referral to the neuro. Although the Pain guy doesn’t feel I have CRPS...I feel like I’m reliving the past going around and around again with doctors. They never performed a skin biopsy for sfn so that could be done as well. I had a herniated lumber L-3/4 disk when I was pregnant with my second son. After he was born I had an injection they did back in the 80’s called chymopapin which was derived from a papaya enzyme to shrink it. It is no longer done because in some cases that enzyme not only dissolved the disk but also nerves. Thankfully that did not happen! So, who knows, maybe there is a lumber spine issue. I had an MRI in 2005 of spine which was ok...God, I hope you feel a lot better on the 15th after that epidural!! You would definitely be experiencing tears of relief!!! It makes sense that it may help being that your toes and balls of feet are involved. My entire feet both hurt up to ankles with an added ball of foot and big toe pain. Thanks for listening and all of your sage advice! I appreciate it! -Laura

Please let me know about the CBD salve, my ball of my right foot and toes are always in severe pain along with both of my legs clear up into the thighs. I've had to teach myself to drive and deal with the pain. But I would love to get some kind of relief. Right now I'm on pain meds, lyrica and other meds but still in major pain. Please help me out.