I would say the pain is not possible to describe. I do mine on a scale of 1to 10. But the pain itself could be burning, tingling, or stabbing. I write every thing down every day . I write down the weather, how much stress I have any changes in my health. This disorder sucks. No one person I've spoken to on this forum seems to say the same thing. So I only can pass on what mine is like. I also have several other health issues. So I just go day to day. And try to find a good day and do something special for myself...I'd suggest you try the same. Keep talking and best wishes.