← Return to Living with Prostate Cancer: Meet others & introduce yourself

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@hodagwi

I was diagnosed in 2005 and treatment has changed a lot since then. I had a score of 6 also. I had radioactive seed implants at Memorial Sloan Kettering in NYC since I was living in that area at the time with 25 doses of radiation afterwards. Biopsies showed cancer in pretty much the whole prostate but that it hadn't spread. Hurrah for early detection. I have been cancer free since then with psa below .1. That is the good news. The bad news is that the radiation had impacted the tissues around the bowel and bladder and over the past 11 years I have had infections since parts of the bladder and bowel are now connected with a fistula or canal between them. Still dealing with that. Each person is different so lots more options now for treatment. Dad was diagnosed in his 60's and lived until age 89 with it not being an issue. A friend was diagnosed in 1999, had it removed but it had spread and died in 2013. Yes, this is a good site and have doctored at Mayo in Rochester and very good doctors there. Univ Wisconsin Madison is also good place from friends who have gone there as is Sloan Kettering in NYC. keep looking and investigating since new treatments, hormone therapy to name one seems to be used a lot.

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Replies to "I was diagnosed in 2005 and treatment has changed a lot since then. I had a..."

Thanks for your input. Sorry to hear that the radiation is affecting your bowel and bladder. I am leaning towards getting it taken out. Hopefully I won't need a catheter for very long. I think that if I didn't have prostatitis and all of the pain that goes with that, I would wait and see what my psa says a year from now. As is, they are going to re-check it in June.

Do you know whether prostate cancer affects the thyroid? My Thyroid hormone level is going low. It went from 4.5 to 3.9