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@waynen

Hi, I finished my proton beam therapy a year ago January 23. The main side effect from the proton beam therapy was pain during urination. Unfortunately, the uretha is going to get radiated. Mine began about a week after the treatment started. They prescribed flomax to address the pain. It solved the problem, but over the last year I've tried to stop flomax, but regretted it and started it again. I also had strong urges at unfortunate times, which went away after six months. As far as lupron, I've had some hot flashes, but actually not real frequent. More bothersome was the weight gain, and tired feeling. In May, I should be free of the lupron effect.

I had my treatment at the Phoenix Mayo and they are first class. We have a condo here so housing wasn't an issue. I did meet several people who stayed for free at the lodge next to the Mayo Clinic. It's worth checking out. Mayo does have a service to help find housing.

Good luck. Take the tour they give and get to know the other guys wearing those "cute" shorts in the waiting room. You all have a lot in common.

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Replies to "Hi, I finished my proton beam therapy a year ago January 23. The main side effect..."

Thank you for this info. May I ask a few questions? How long did you stay on Lupron? And how long have the negative side effects of Lupron lasted? Do you know how common the urination pain is among proton patients? Why did you wish to stop the Flomax? Your side effects sound worse than what I have heard from most others. Do you fell that is true, or are your side effects representative of most proton patients you have met? I certainly wish you the best in your recovery. Thank you for honestly sharing..