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Living with Prostate Cancer: Meet others & introduce yourself

Prostate Cancer | Last Active: Sep 10 6:24pm | Replies (648)
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@bamagirlinaz

My husband was biopsied December 30 and cancer was found in 11 of the 12 cores. Gleason 7, grade 4+3, strong family history of cancer. Genetic test results are pending. A Phoenix urologist did the biopsy and wants to immediately talk about surgery even before scans are done. So, I made a call to request an appointment with Mayo Clinic. We've both had good experiences with Mayo and both had successful surgeries there. Gathering records to fax to Mayo and awaiting an appointment. I'm having trouble sleeping and tend to overthink like if he needs 48 radiation treatments, where are we going to stay? We live in Yuma. Cannot afford a hotel for a month or two.

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Replies to "My husband was biopsied December 30 and cancer was found in 11 of the 12 cores...."
dandl48 Dave | @dandl48 | Jan 25, 2020

@bamagirlinaz I'mm pretty sure Mayo-Phoenix has some free lodging for cancer treatment patients. I would check with them for available. Best of luck.

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kujhawk1978 | @kujhawk1978 | Jan 25, 2020

I live in Kansas City, had my surgery in March 2014 at age 58, and SRT in March 2016 after the SRT failed I went to Mayo for the C11 Choline scan and consult with Dr. Kwon at Rochester in January 2017.

The scan found four pelvic lymph nodes involved but no organs or bones.

We agreed to do six cycles of taxotere, 18-24 months of Lupron and 25 more radiation treatments.

I did all my treatments back in KC, returning to Mayo every 3-4 months for a C11 Choline scan and urology consult.

I had full confidence in my radiologist here in KC, latest equipment, top notch radiology team and a willingness to work with me and Mayo on the treatment plan. She built a 3D model, consulted with Mayo on the treatment fields, boosts to the four sites, treatment margins and total dosage.

That may be an option for you, a local radiologist working in concert with Mayo to develop and execute a treatment plan.

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