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@waynen

The hardest part for me was who to talk to. The Urologist does the diagnosis, but his expertise is surgery. He had me schedule a session with a radiation oncologist, but he only did IRMT. I talked to patients who said their Urologist walked out of a meeting when they said they were considering Proton Therapy. Dr Walsh recommended that you consider contacting a National Cancer Center for treatment. They will have doctors with expertise in numerous treatment options. He also said they have better track record in curing cancer. All Mayo sites are centers, but their are others. My doctors didn't send me there. I had to find them. Unfortunately, they are not easily accessible to many people. There were patients at the Arizona Mayo Clinic from all over the country. You have to be very pro active and the resources to get their. Cancer society can provide free housing.

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Does anyone have experience working with university of Iowa hospital urology?