Replies to Wow. I was going to ask my respirologist tomorrow so perhaps my question should be when…

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MAC & Bronchiectasis | Last Active: Feb 19 2:40pm | Replies (144)

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@kathyhg

Wow. I was going to ask my respirologist tomorrow so perhaps my question should be when I do the first culture.

I feel a bit foolish for not knowing this but was so sick and overwhelmed when I started this journey that I can’t honestly even remember what the doctor told me about the disease and the treatment. I’ve learned enough to make a list for this appointment.

Thanks again. This forum has been a lifesaver for me.

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Replies to "Wow. I was going to ask my respirologist tomorrow so perhaps my question should be when..."

Jen_b | @jenblalock | May 15, 2019

Check out this website: https://www.aboutntm.com/ It might help. I am also looking for a website where they give you questions to ask your doctor. I know there is one but cannot remember where. I've been off meds and MAC free for 2 years now so it was a while ago but I definitely remember the confused and scared feelings!

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Terri Martin, Volunteer Mentor | @windwalker | May 15, 2019

@kathyhg I am so glad that you found this site useful. I have a feeling this disease will keep us on a learning curve for awhile. Good luck with your dr appointment.

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