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MAC & Bronchiectasis | Last Active: Feb 19 2:40pm | Replies (144)
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@sueinmn Late reply. "once your lungs are colonized with MAC, it is not totally eradicated by treatment – just knocked down to undetectable numbers". Interesting. I've read quite a few studies but haven't seen this. I am going to look further into it. I agree with just living life and not worrying about the source of MAC/NTM. It is everywhere in the environment and my specialist said I would need to live in a bubble in order to avoid it. I've been off meds and MAC free (or perhaps MAC undetectable?) for over 2 years so far!
Replies to "@sueinmn Late reply. "once your lungs are colonized with MAC, it is not totally eradicated by..."
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Please share your findings on this! I’ve just finished my first 3 months on medication. When I started, I thought that the medication would “cure” the mac. I’ve learned a lot since then and now hopeful that the the treatment gets it to undetectable numbers.
Question - how do the specialists figure out when that is? CT? Bronchoscopy? And I thought you stay on the meds for a period of time even after it’s eradicated?
Tomorrow is my first follow up appointment with my respirologist but I would like to go prepared :).
Thanks.