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jolenekellner53 (@jolenekellner53)

Does anyone know or have a INTRATHECAL PAIN PUMP?

Chronic Pain | Last Active: Sep 7 10:56am | Replies (22)

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@cbrackle

I had one implanted about 2 weeks ago.
For reference I also have 2 Stim units implanted (6 surgeries – due to doctor issues and one due to mechanical failure).

This surgery was outpatient and was the least painful recovery than any of the other ones.

In 2 weeks I already love the unit. They titrate up slowly but it has already given me more stable relfief than the pills, stimulators, or medical cannabis ever did. Plus I don’t have to carry pills around or worry if I forgot them at home.

I’d be glad to talk more if you want. I’ve been fighting chronic pain (as a result of Lyme disease) for more than 10 years now. Tried many different things.

So far this is the best hands down.
Carl

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Replies to "I had one implanted about 2 weeks ago. For reference I also have 2 Stim units..."

Thank you for the information. My 24 year old daughter is considering. Would you be willing to share what it looks like? I have not been able to find pictures of someone who has had one implanted. She’s very tall and thin. Afraid it’s too big for her.

I have an intrathecal pump with dilauded for intractable trigeminal neuralgia
I had two brain surgeries and radiation in the brain that lasted only eight months. The pump is giving me relief and I can speak ( I had lost the ability to speak due to the severe facial spasms
The pain is now what I call livable, I mean I can live with it.
My neurosurgeon and neurologist are doctors at Baylor College of Medicine in Houston. You probably need to research first and find the best doctors where you live
The pump is not super easy
It has cause my abdomen to be enlarged and I have to wear bigger pants or just dresses but who cares when I am not feeling I want to rip my face off right?
Good luck with all my heart!

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