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← Return to High Risk Mutation (ie. BRCA, ATM, RAD51D)
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High Risk Mutation (ie. BRCA, ATM, RAD51D)
Breast Cancer | Last Active: Aug 23, 2023 | Replies (26)Comment receiving replies
Hi Rochellec13! I would recommend you meet with a genetic counselor if you haven't yet. The National Comprehensive Cancer Network (NCCN) states that with a RAD51C mutation there is unknown or insufficient evidence for breast cancer risk but an increased risk of ovarian cancer. They state to "consider a Risk Reducing Salpingo Oophorectomy (RRSO) at 45-50 y". This age recommendation can change based on family history. The surgery can be done laparoscopically and has a relatively short downtime. I help run a support group through Facing Our Risk of Cancer Empowered (FORCE) and we meet regularly at the Dan Abraham Healthy Living Center (DAHLC). Our next meeting is June 6th at 7pm. We would love to have you!
Replies to "Hi Rochellec13! I would recommend you meet with a genetic counselor if you haven't yet. The..."
Facing Our Risk of Cancer Empowered (FORCE) meetings are held in Dan Abraham Healthy Living Center (DAHLC) in at the Mayo Clinic Rochester campus.
@corinneberg do you meet regularly? And can people join the meeting when visiting Mayo Clinic, Rochester, in other words not as regular attendees?
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I agree. I would highly recommend genetic testing following the diagnosis of ovarian cancer.At the institution where I received my primary care, they advised me to have germline testing. In addition, I participated in a study that provided genetic information about the tumor itself which I have found helpful in my understanding of my specific diagnosis. It was also helpful to me to provide my daughters with this information for their health and well-being.