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NET - Insulinoma

Neuroendocrine Tumors (NETs) | Last Active: Nov 11, 2023 | Replies (210)

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@hopeful33250

@marilyn2525

So glad to hear that you are doing so well, Marilyn!

Just wondering, did you have the Whipple procedure or something else?

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Replies to "@marilyn2525 So glad to hear that you are doing so well, Marilyn! Just wondering, did you..."

Big delay in answering your questions...I believe both surgeries were modified whipples. In my case the pancreas and spleen were not removed. In laymans terms, the first surgery was to remove the tumor in the head of the pancreas, the second surgery approx. 9 weeks later was to fix the pancreatic leak and if not possible remove 3/4 of the pancreas. I was blessed and my surgeon Shaun Cleary was able to suture my leak to the bottom of my stomach. Between the leak, two big surgeries, stress, and rapid weight loss I have loss a lot of hair. I'm guessing it will come back. I'm very fortunate I was accepted to Mayo. I truly feel that without that appointment, I would have died and no one would have ever know why. I live near a hospital, but we only now have two endocrinologist and I was never referred to one.