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← Return to Cavernous sinus meningioma
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Brain Tumor | Last Active: Dec 7, 2024 | Replies (68)
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thoughts anyone? A mass in my right cavernous sinus was found, nuero says it is inoperable, he is currently comparing an older MRI to see if mass was missed previously, he said next step if it wasn't there or has grown and was missed will be oncology for radiation, chemo or gamma knife. I did feel he was a bit dismissive of my symptoms, blurred vision, double vision, pain in right side of my face and ear behind eye and facial numbness that goes down cheek into lip/teeth, dizziness, fatigue, headache daily...… the list can go on and on. I need some guidance or advice.
Replies to "thoughts anyone? A mass in my right cavernous sinus was found, nuero says it is inoperable,..."
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Hi @loolookirl You should be referred to a neurosurgeon. The Neurologist did the same to me by dismissing me and saying it was very small. I was in so much pain. My eyes crossed which caused double vision and my face was numb plus all the other symptoms you are having. I found out the meningioma was small however it was pressing on the cranial nerves. The unbearable shooting pain was due to trigeminal neuralgia and the Neuro surgeon placed me on Tegratol 300-500 mg 4-6x per
Day until they could schedule the gamma knife. The pain went away within a few days, double vision for better after 4-5 months. The numbness may also take a few weeks to improve. Also ask the nuerosurgeon if possible Tolassa Hunt Syndrome (inflammation in the cavernous sinus) and see if antibiotics and steroids will alleviate the pain and numbness. Hope this helps.