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I want to have my records sent to Mayo or go there. There was one suggestion from a successful surgical woman in Pennsylvania who had the same tumor in the same spot. I think you nailed it ok the head when you said that there is a huge frustration that it will only be managed and never truly taken care of. I was told that with meningiomas that they can grow back, they they can reappear or another can appear at anytime. Also that typically in our area they are very hard and dense and 60% of the tumors don't shrink. Is there anything else you were told??? I am to get am MRI every year unless my vision gets worse or my headaches worsen ( they can't possibly) or my gait is off more than I am unable to stand on my right foot and I cannot walk toe to toe. Also I have the vagal nerve reaction and if that worsens.
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I didn’t realize I could no longer walk toe to toe till I tried to in the Dr. office. I was shocked but the Dr report said normal for my age! I’m 56 and I guarantee I did it less then a year ago with my daughter. I am having a hard time working part time and homeschooling with this headache.
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Hi @julieannarcand, you mention that you may wish to seek care at Mayo Clinic. Naturally, I support the idea of seeking a second opinion at Mayo Clinic. Experts at the Mayo Clinic can help navigate your healthcare journey, answer your questions and guide you through the treatment plan. When you call at any of our 3 campuses, you will be offered an appointment within 48 hours http://mayocl.in/1mtmR63 Be sure to mention the Brain Tumor 48-hour Access program.
It starts with a phone call and then you can decide whether to seek the second opinion or not.