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julieannarcand (@julieannarcand)

Cavernous sinus meningioma

Brain Tumor | Last Active: Aug 29, 2020 | Replies (32)

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@pejiota4jack

I went to Mayo in Rochester and had Gamma knife surgery. They did not consider it operable. I was actually pretty upset when they said inoperable. Realized it will never be truly “fixed”, just managed. Very thankful to have a chance for no further damage! I have even regained a little more control of my right eye and have less double vision.

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Replies to "I went to Mayo in Rochester and had Gamma knife surgery. They did not consider it..."

Hello Karen @pejiota4jack, I just read your different posts. I had a cavernoma in May 2017, as it was liquid blood, it was removed by biopsy (without surgery). However, a year later, a brain tumor (nonoperable) appeared in the same place. My tumor, central, is located at the 3rd ventricle, behind the eyes. I am treated in chemotherapy, which controls growth for the moment. Like you, the tumor is still there. My neuro-oncologist might also want to treat me with gamma knife. We are still lucky to benefit from this advanced technology. Do you have any information to share on gamma knife? Also, I thought we were doing gamma knife only once. Did you have several treatments? Have you had any negative side effects? How's it going? Thank you for your help.

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