← Return to Cavernous sinus meningioma

Discussion

Cavernous sinus meningioma

Brain Tumor | Last Active: Dec 7 9:53am | Replies (68)
Comment receiving replies
@jrt26

@julieannarcand Sorry to hear you have this cavernous sinus meningioma. Mine did not wrap around the carotid artery. It was discovered after my eyes crossed and had double vision as well as
Shooting pains in my right eye and face. I went to UCSF and the neurosurgeon recommended gamma knife which helped for the next 5 years. My vision returned to normal after 5-6 months and no facial pains or shooting pin like pains in my eye. Let me know if you have any specific questions. Since I did experience new growth after 5 years.

Jump to this post

Replies to "@julieannarcand Sorry to hear you have this cavernous sinus meningioma. Mine did not wrap around the..."
julieannarcand | @julieannarcand | Oct 5, 2019

I have heard that there is a strong possibility of there returning either in the same location or a different one. My tumor didn't shrink with radiation and the next specialist said that 60% of them do not. I'm only 5 months post radiation but my eye sight has gotten worse and so have my headaches. The people I saw where I had my radiation done were all very nice but it seemed like any questions I had the answer was always " it will take 6 months to a year " for the fatigue or any other symptoms I was experiencing. So I just stopped asking

VIEW AND REPLY
mariefavaloro | @mariefavaloro | May 22, 2023

May I ask who your doctor is at ucsf.
I am waiting for an appt.
I have same diagnosis.
Thank you

VIEW AND REPLY