Thank you for your reply. I hope that you at least felt like you got good and compassionate care. That is what seems lacking in the Seattle area where I initially was diagnosed. I go for the second opinion today to a cancer center in a much smaller town (though the mother hospital is based out of Seattle). Just that they were so compassionate and kind has already made me feel better. Are you saying surgery, initially made things worse? And are gradually getting better? Did you also have to have radiation? Best wishes