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I live in New York. I was pretty healthy before my ankle fracture. But do have severe environmental allergies. I’ve never suffered from hives prior to Jan 2019.
I’ve been reading that people with CRPS, their health starts declining once diagnosed. I feel like that has started since Jan. 13 months into this mess.
I really believe the itching is from the nerves. But I just don’t feel like anyone listens.
I don’t know which dr to go to to figure out my symptoms. Drs say take this med and then pass me off to the next dr.
My next stop is pain management but would he deal with the itching too. It’s my husbands dr so I know he won’t prescribe meds. So then what?
I know this isn’t an early find. I already have muscle atrophy in my calf and my ankle. But I don’t have the severe all day burning pain. But have everything else all day long.
Replies to "@rsnowflake @barbbie I live in New York. I was pretty healthy before my ankle fracture. But..."
I have RSD/CRPS type 2. I began itching awhile ago and it drives me nuts. My head itches all the time. When I go to sleep the itching is either on my back or on both hips. I was injured in 2017 during foot reconstruction surgery when some nerves were clipped. Main important nerves. No one would confirm this happen until it was too late to start treatment. I now have it full body. I lose my voice, I get rashes, tremors, fainting is a good one, you get no notice. Stomach issues, muscles shrinking, I walk with a severe limp....Pain meds do not help. The spasms on the damaged foot are 20 on the pain scale. But believe it or not the worst thing is exhaustion. what started in my foot has worked its way up my leg. The constant pain exhausts me. I sleep until noon, take a couple hours nap around 4:00 and I'm in bed by 12:00....So I'm on 12 hours and off 12 hours. I can not function normally anymore. I have lost my concentration, I can't read. I was a gourmet cook, I burn things now....it's horrific. And the worst part is the surgeon knew this occurred during the surgery and played dumb. He got the Neurologist I went to to falsify his test results. The Medical Board in my state wouldn't even look into the case, and I had everything in medical records, Portal messages, e-mails and phone calls. they said it was all just "alleged".......it is truly a nightmare.
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@rsnowflake @rags,
Am waiting for reply from a pro. From my experience I stay away from pills. I do have a tens unit for pain, script for lidocaine patches and lidocaine -prolocaine cream, and my spinal cord stimulator. For extreme pain or parts not covered by stimulator, I do take prescribed oxycodone. I do take it sparingly. I do have about seven left out of thirty that I got in July.