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Hello @rags. I would like to invite @mam14, @rsnowflake, @struggler23, @barbbie, @lizzyisme, to this conversation as they have all recently discussed having CRPS and may be able to share whether or not they have dealt with any itching as a result.
@rags, itching must certainly be a frustrating side-effect of what you are going through. While we wait for others to share their experience with treatment and side-effects, is there anything that has helped with relieving the itching?
Replies to "Hello @rags. I would like to invite @mam14, @rsnowflake, @struggler23, @barbbie, @lizzyisme, to this conversation as..."
I too have CRPS (Complex Regional Pain Syndrome). back in 2009 i had an avulsion fracture and had surgery too. when i got the walking boot about 3 weeks later, i developed blisters on/in the incision. they itched and hurt at same time. i was diagnosed with contact dermatitis(i've had contact dermatitis before and it never looked like that). once blisters healed, my skin itched like mad and the only medicine i had was a home remedy. i used mentholatum on it, mainly at night, and it would not itch at all during the night. during the day, i tried to stay busy so i could ignore it. it slowly left and after 5 years i was itch free, and still am.
then 18 mths ago i broke my wrist. when cast came off about 8 weeks after accident, i had very weird symptoms (extreme swelling, red skin, numbness, skin eventually turned pale and shiny and thin, and a burning sensation strongest at night. my PT diagnosed me with CRPS with all the classic symptoms. it is due to nerve damage caused by the injury and being immobile for too long. it is also autoimmune. i too have lots of allergies and possible celiac (some tests were positive and 1 negative. too be safe i was put on gluten free diet). i also have a female disease that causes severe pelvic pain. i had hysterectomy for that and again develped symptoms similar to my ankle, only no blisters, but a red rash that itched. thankfully the itching did not last nearly as long, but the pain did. now i wonder if i had undiagnosed CRPS on those 2 occasions..
BTW: when i told my dr that the PT had diagnosed me with CRPS, he said "i don't think you have it" without examining me or anything. i still have symptoms of CRPS, but not as strong as before. Exercise is supposed to be the best thing for it as it keeps muscles from atrophing.
i use topical medicines for the pain and it helps, but you should not use it on broken skin.
Mentholatum has always helped me for immediate itching.
Prednisone is good for inflammation
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Thank you so much for adding others. The only thing that has helped was being on prednisone. But once weaned off it’s slowly coming back.