Hi John, since your infections are mostly in your lungs, I wonder if any of your doctors have mentioned using inhaled steroids and inhaled antibiotics (like tobrimyacin). These have less impact on tour body systems and focus on the main infection/weakness. I also wonder about immunotherapy helping you, like IV immunoglobulin. Have your IG levels been tested?

Just more food for thought for you… Wishing you the best, what area of the country do you live in