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I have the same problem. I was on cellcept but changed to azathioprine and prednisone along with bactrim. Not only are my lungs damaged but my muscles and joints are really becoming impaired. They diagnosed me with mixed connective tissue disease and a few other autoimmune disorders. So far pretty frustrating, have been dealing with it for 9 yrs. Looking at infusions but the risks worry me. Good luck!
Replies to "I have the same problem. I was on cellcept but changed to azathioprine and prednisone along..."
I was also diagnosed “undifferentiated mixed connective tissue disease.” But what is hitting me most now is autoimmune attacking my lungs. I’m allergic to Bactrim . Just started on this journey June 2018 when finally they diagnosed me with autoimmune and cellcept and prednisone gave me a better life . Though when flare ups come, it’s bad .. but not as bad as before when they did
Not know yet that I am autoimmune. So there was definitely a progress there
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Hi @samandhuck, welcome to Connect. You mentioned you have been diagnosed with mixed connective tissue disease. I thought you might also be interested in another discussion here on Connect.
> Groups > Digestive Health > MCTD
-- https://connect.mayoclinic.org/discussion/mctd-265a2b/
What type of infusions are you looking at? I'm sure there are other members that may be able to share their experience with you.